Working agenda

Updates are made daily; please check back for more detailed information

General Schedule Session placements subject to change

Breakfast Roundtable Discussions

Plenary Sessions

More than a Seat at the Table: Creating a Culture of Patient Engagement

Building a truly patient-centric R&D enterprise is about more than just occasionally asking patients what they think. It’s about changing the culture of organizations in many sectors – government, academic, industry and even the patient community itself. And culture change is hard work. It is early in this change process, but that work is beginning. Where are we seeing successes, and what tools and approaches are helping? Where are we falling short, and what are the limitations of this movement?

Making Waves: Trends and Technologies Transforming Health and Research

Cutting-edge technologies and major trends are transforming business and society. What influence will these have on health and life sciences? How can artificial intelligence, best known for beating humans at board games, make R&D more efficient and care more effective? What does the blockchain platform, which enabled the bitcoin virtual currency, have to do with health? And how are millennials – the largest living generation – changing priorities and practice in health and research?

New Frontiers in Preventive Medicine: From Faster Cures to Faster Health

As health care moves increasingly from treatment to prevention and from reactive to proactive, new opportunities and challenges are emerging for researchers, companies and consumers. How well can we predict individuals’ risk of disease? What new tools do we have to prevent it? What are the business and economic implications of a shift from managing illness to managing wellness? And how must the role of the individual patient/consumer change, as their engagement with their health data and status becomes increasingly important

Big Science: Does More Mean a Better Future?

In life sciences, the Human Genome Project is considered the great success story of “big science,” a complex project that has laid the foundation of so much scientific progress in its wake. Since then, we’ve seen the BRAIN initiative, the Personalized Medicine Initiative, the Cancer Moonshot, and more large-scale efforts in the United States and abroad. What advances in health might we see over the next few decades if these efforts bear fruit? What other major challenges do we face that would lend themselves to a “big science” approach? Can we sustain all these costly initiatives? Will life sciences begin to look and work more similar to a field like physics?

Panels

Rx for Innovation: Recommendations for the New Administration

The next president will have incredible opportunities to improve the health and productivity of the American people, reduce the cost of disease to society and create an engine of economic growth. FasterCures will share a set of actionable recommendations for the new administration to accelerate our ability to get new and better treatments to patients faster and support the evolution of the biomedical sector. This session will feature senior leaders from politics and government debating these recommendations, and their possibility for success in the current political climate.

Tools of Engagement: How Patient-Centricity Can Advance Product Development

Borrowing methods from the fields of health economics, marketing and engineering, a new science of patient input has emerged, embracing data as a means for measuring patient-centered outcomes and quantifying patient preferences. In this session you will hear from and interact with leaders who have used patient data to develop patient-centered outcome measures and endpoints, patient preference studies and other tools for product development. Learn their lessons and contribute your own experiences.

 R&D Remodel: Building Trust and Changing the Culture in Research

The culture of medical research needs a makeover if it wants to breed innovators unafraid to take risk. Trial and error are at the heart of the scientific process, yet academia and industry don’t seem set up to incentivize the behaviors we know are important to making progress. Can we change “the way we’ve always done things” at academic research institutions, upending the system of eternal post-docs, publication and tenure? Can researchers be rewarded for data sharing, collaboration, reproducing their results and sharing negative results? Can companies with good ideas survive the shifting sands of the marketplace?

Seize the Data: Successes in Collecting Patient Data for Research

We’re experiencing an explosion in sources and repositories of patient data, from electronic health records, registries, online data-sharing communities, smartphones, wearables, social media and more. What are these data being used for, and what are the possibilities? Are these data representative enough to be useful? Can they be integrated with other types of data? What is the patient’s role in these efforts?

Backing the Next Breakthrough: New Models for Investing in Biomedicine

Despite the growth of venture investment in life sciences, the lion’s share of the cash is flowing to a small number of companies at later stages of development. What new models and sources of capital are out there that could help finance the wild-card ideas from which true breakthroughs are likely to emerge? Is impact investing a concept with relevance in this space? How are philanthropies making their mark in new ways?

Workshops

Who Tells Their Story? Determining Value from the Patient Perspective

At last year’s Partnering for Cures, we laid out the rapidly growing landscape of “value frameworks” intended to help various stakeholders understand the value of new and existing treatments for disease, and concluded that patient engagement with those efforts had been inadequate. Since then, FasterCures and Avalere have been working on a “patient-perspective value framework,” which we will present and seek input on in this workshop. What are the potential applications and use cases for such a framework? What types and sources of data are needed? What criteria should be used to measure patient-centered value? And how should this information be presented in a way that is most useful to all stakeholders involved in care and reimbursement decisions?

Patients in the Driver’s Seat: Precision Medicine and Direct-to-Patient R&D

Join this workshop to hear from experts in business, biotech and research talk through real-world case studies exploring how researchers and patients can effectively partner to advance medical research.

Challenge Accepted: Data Science Solutions to Accelerate Medical Research

Time and again we hear about the problems and challenges associated with harnessing “big data” in medical research. Whether it’s the interoperability of electronic health records, lack of qualified data scientists in medical research or barriers to sharing data, challenges abound. This workshop will explore how some organizations are working to more effectively collect, analyze and share data to accelerate discovery and improve health-care delivery.