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Panel Detail

Workshop: Conquering Clinical Research: Engagement Today for Cures Tomorrow

Wednesday, July 12, 2017
2:30 PM - 3:30 PM
Cityside 1

Expediting recruitment for clinical trials has long been talked about as a magic bullet for speeding up medical research, saving time and money, and partnering with patients. Today's technological advances and tools are transforming the ways patients connect with researchers, foundations, companies, and each other. Stakeholders are realizing that waiting to engage patients until the clinical stage is too long, and with that revelation, institutions are moving on to more disruptive ways of working with patients to prepare for clinical research. How are different approaches to clinical research engagement beneficial to both researchers and to patients? How can we empower the next generation of health citizens by eliminating barriers to entry for patients in clinical research? This workshop will look at initiatives disrupting clinical research participation, and how we can better align the design and conduct of research with the realities of participants' lives and priorities.

Moderator


Jason Bobe

Associate Professor and Director, Sharing Lab, Icahn Institute for Genomics and Multiscale Biology, Mount Sinai School of Medicine

Speakers


Kristin Carman

Director of Public and Patient Engagement, Patient-Centered Outcomes Research Institute

Sohini Chowdhury

Deputy CEO, The Michael J. Fox Foundation for Parkinson's Research

Holly Fernandez Lynch

Executive Director, Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics, Harvard Law School; Faculty, Center for Bioethics, Harvard Medical School

Anna McCollister-Slipp

Founder, VitalCrowd; Chief Advocate, Participatory Research, Scripps Translational Science Institute

Rachel Wagman

Executive Director, Global Clinical Development, Amgen