Agenda

2009 Agenda

 1 – Dec 6:00 – 8:00 PM Registration
6:30 – 8:00 PM Welcome Reception
     


2 –
Dec
7:00 AM – 7:00 PM Registration
7:00 – 8:00 AM Breakfast featuring Therapeutic Affinity Roundtables
8:00 – 9:00 AM Plenary Session: Partnering for Cures: Paving the Way to Cross-Sector Collaborations
9:15 – 11:40 AM Partnering
9:15 – 10:10 AM
Breakout
Sessions
Crossing the Valley of Death: The Translational Funding and Management Gap
Maximizing Your ROP (Return on Philanthropy)
Cure Entrepreneurs: New Nonprofit Business Models to Accelerate Research
10:15 – 11:40 AM Medical Research Foundation Presentations
10:15 – 10:40 AM Multiple Myeloma Research Foundation
Louise M. Perkins, Ph.D., Chief Scientific Officer
Alzheimer's Drug Discovery Foundation
Howard Fillit, M.D., Executive Director
Foundation Fighting Blindness
Stephen Rose, Ph.D., Chief Research Officer
10:45 – 11:10 AM Leukemia & Lymphoma Society
Louis J. DeGennaro, Ph.D., Executive VP and Chief Scientific Officer
Alzheimer's Association
Harry Johns, President and CEO
Hide & Seek Foundation
Jonathan Jacoby, CEO, The R.A.R.E. Project; Chair, The Hide & Seek Foundation for Lysosomal Disease Research
Steven U. Walkley, DVM, Ph.D., Sidney Weisner Laboratory of Genetic Neurological Disease, Department of Neuroscience, Rose F. Kennedy Center, Albert Einstein College of Medicine; Investigator, SOAR-NPC Project
11:15 – 11:40 AM Melanoma Research Alliance
Suzanne Topalian, M.D., Chief Science Officer
Michael J. Fox Foundation for Parkinson's Research
Sohini Chowdhury, Associate Director, Team Leader
International Mental Health Research Organization
Eric J. Nestler, M.D., Ph,D., Scientific Advisory Board Chairman
12:00 – 1:30 PM Luncheon Plenary: A Conversation between Michael Milken and Jeffrey Kindler
1:45 – 3:40 PM Medical Research Foundation Presentations
1:45 – 2:10 PM Addario Lung Cancer Medical Institute
Steve Young, President
ALS Therapy Development Institute
Steve Perrin, Ph.D., CEO & Chief Scientific Officer
PATH Malaria Vaccine Initiative
Christian Loucq, M.D., Director
2:15 – 2:40 PM Children's Tumor Foundation
Kim Hunter-Schaedle, Ph.D., Chief Scientific Officer
John W. Risner, President

Fast Forward
Kathy Smith, Managing Director
Medicines for Malaria Venture
Patrick Nef, Ph.D., Executive VP of Business Development
2:45 – 3:10 PM Dr. Susan Love Research Foundation
Susan Love, M.D., President
Accelerated Cure Project for MS
Hollie Schmidt, M.S., VP of Scientific Operations
Global Alliance for TB Drug Development
Asmita Barve, M.A., M.B.A., Manager, Resource Mobilization
3:15 – 3:40 PM Susan G. Komen for the Cure
Elizabeth Thompson, Vice President, Health Sciences
Myelin Repair Foundation
Russell “Rusty” Bromley, COO
Aeras Global TB Vaccine Foundation
Lewellys F. Barker, M.D., MPH, Senior Medical Advisor
1:45 – 4:40 PM Partnering
3:45 – 4:40 PM
Breakout
Sessions
Partnering with Patients
Giving Smarter: Building a High-Impact Philanthropic Portfolio
Venture Philanthropy: The New Venture Capital? (Audio clip online)
5:00 PM – 6:30 PM Networking Reception
     


3 –
Dec
7:00 AM – 3:00 PM Registration
7:00 – 8:00 AM Breakfast featuring Therapeutic Affinity Roundtables
8:00 – 9:00 AM Plenary Session: Breakthrough Science
9:15 – 11:40 AM Partnering
9:15 – 10:10 AM
Breakout
Sessions
Industry's Changing Business Models
Stories from the Front Lines of Philanthropy
Is NIH Investing in Innovation?
10:15 – 11:40 AM Medical Research Foundation Presentations
10:15 – 10:40 PM Pancreatic Cancer Action Network
Julie Fleshman, President and CEO
MDA Venture Philanthropy
Jane Larkindale, Ph.D., Portfolio Director
International AIDS Vaccine Initiative
Seth Berkley, M.D., President, CEO and Founder
10:45 – 11:10 AM Mesothelioma Applied Research Foundation
Christopher Hahn, Executive Director
Parent Project Muscular Dystrophy
Pat Furlong, Founding President and CEO
Drugs for Neglected Diseases initiative
Jana Armstrong, Executive Director, DNDi North America
11:15 – 11:40 AM Prostate Cancer Foundation
Jonathan Simons, M.D., President and CEO
Rett Syndrome Research Trust
Monica Coenraads, Executive Director
Institute for OneWorld Health
Robert Farrell, Chief Financial Officer
12:00 – 1:30 PM Luncheon Plenary: A Conversation between Michael Milken, Gail Cassell, and Joshua Sharfstein
1:45 – 3:40 PM Medical Research Foundation Presentations
1:45 – 2:10 PM Chordoma Foundation
Simone Sommer, M.D., MPH, Cofounder, Visionary and President
Josh Sommer, Cofounder, Research Coordinator, Echoing Green Social Entrepreneur Fellow

Epilepsy Therapy Project
Joyce A. Cramer, President
Seattle Biomedical Research Institute
Ken Stuart, President and Director
2:15 – 2:40 PM Life Raft Group
Norman Scherzer, Executive Director
Progeria Research Foundation
Audrey Gordon, President and Executive Director
Partnership for Cures
Bruce E. Bloom, Ph.D., President and Chief Science Officer
2:45 – 3:10 PM Damon Runyon Cancer Research Foundation
Lorraine W. Egan, Executive Director
Tuberous Sclerosis Alliance
Vicky Holets Whittemore, Ph.D, VP and Chief Scientific Officer
Creative Commons
John WIlbanks, Vice President, Science Commons
3:15 – 3:40 PM Alpha-1 Foundation
John W. Walsh, Co-founder, President and CEO
Juvenile Diabetes Research Foundation
Alan J. Lewis, Ph.D., President and CEO
Biomarkers Consortium, Foundation for the NIH
David Wholley, Director, Director, The Biomarkers Consortium
Foundation for the National Institutes of Health
Shawnmarie Mayrand-Chung, Ph.D., J.D., NIH Program Director, The Biomarkers Consortium and Senior Advisor to The Biomarkers Consortium
National Institutes of Health, Public-Private Partnerships Program
1:45 – 4:40 PM Partnering
3:45 – 4:40 PM
Breakout
Sessions
Challenges of Clinical Trials and Product Approval
Collaboration Models in Global Health
Patients 2.0