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Presentation- Jonah's Just Begun/Phoenix Nest: Disrupting drug discovery
Thursday, November 29, 2012
1:45 PM - 2:10 PM
Jonah Weishaar has a rare disease called Sanfilippo Syndrome (MPSIIIC). Jill Wood formed Jonah's Just Begun (JJB) to fund research into the disease and to help other families. Since Partnering for Cures 2011, JJB has helped get language included in Prescription Drug User Fee Act, formed a company, Phoenix Nest, Inc. (PN) to commercialize treatments for MPSIIIC, and submitted a Small Business Innovation Research proposal to fund PN research. JJB has co-authored a white paper on a generalized approach for orphan diseases and has developed a mobile app (ODDT) to raise awareness and share drug discovery data. This presentation will highlight what is possible in a year to disrupt the drug discovery process.
Treasurer, Jonah's Just Begun and CEO, Phoenix Nest, Inc.
CSO, Phoenix Nest, Inc.